Good news first:
Ava's blood test was negative for the igE factor for milk and eggs. In other words, she does not have a true, a therefore lifelong, allergy to milk or eggs. For that matter, she isn't allergic to peanuts, shellfish, or anything else. WHEW!!!!
We're being referred to a pediatric gastroenterologist at Dell Children's Hospital. The doctor thinks - and perhaps the bloodwork suggests - that Ava has one of two things. Either she has FPIES, the more severe of the two he suspects, which is also known as Food Protein Induced Enteropathy Syndrome, or she has Dietary Induced Enteropathy Syndrome (I don't particularly like this acronym...). While both mean that at this point in time her stomach cannot digest the proteins in certain foods, which causes a gastrointestinal reaction, FPIES is a more severe form, which additionally causes a sharp decrease in blood pressure and lethargy. While I feel like it's more likely to be the latter - the dietary-induced (though since both are due to food proteins, these names really don't make much sense to me...)- since she doesn't seem to be showing changes in temperament or energy levels, if it does happen to be FPIES, it could be severe enough that if she consumes dairy or egg products, she could potentially end up in the hospital due to the drop in her blood pressure. Needless to say, despite my relative confidence that it's the less severe form, mama is a nervous wreck.
There's more. Dell Children's has the only pediatric GI doc in Austin, and, ridiculously, they also don't take our insurance. W.T.F. Are you kidding me?! They're a nationally renowned children's medical hub, and they don't take our (great!) insurance?!? I spent the whole of this day on the phone with a.) our insurance, b.) the allergist referring us, and c.) GI specialists in Central Texas who take our particular insurance, hoping one will see a not quite 1-year-old.
Which brings me to...the horror that is this doctor's visit. While I have yet to find a doctor and cannot confirm that this is what's going to happen, there is a high chance that the reason for the appointment will be a consult so that they can ultimately do an endoscopy on my baby. Yes, they may have to put A under general anesthesia, insert a tube down her tiny baby throat and into her little tiny baby belly, and do a biopsy. And THAT, my friends, is more than this mama can take :(
Of course if it is ABSOLUTELY necessary and critical, I will allow it - I would do anything for her. But in that anything is included that I will protect her and shelter her from anything and everything within my power, and if there is any other way they can go about this, they're not getting near my baby with a scope.
I'm really starting to hate Tuesdays :(
Anyone with experience with these kinds of things? Ever had your baby put under? Know of any ped. GI specs in Central Texas who see kids and are awesome? Know anything about either of these potential conditions? Have Dell Children's-accepted insurance and care to marry me so I can have Ava seen there by the best? Ok, ok, kidding about that last one...kind of. Either way, if you have any advice, I'm all ears!